Alzheimer’s Society – North West England

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A new singing group for people living with dementia is being launched by Alzheimer’s Society in Grange-over-Sands. Singing for the Brain® is a programme developed by Alzheimer’s Society for people with memory problems. The Singing for the Brain® programme promotes communication through singing which can help with articulation, concentration, focus and motivation. Specially trained facilitators deliver a varied programme of vocal, rhythmic and gentle physical exercise and dance, along with songs from different eras and styles.The new group has been made possible after a £1,500 donation from Grange-over-Sands Soroptimists International. President of the organisation, Janice Carrick, said: “Music is very dear to my heart and I had been inspired by visiting some of the Singing for the Brain sessions in Kendal. I felt that there must be a need for this wonderful service in Grange.  “As Soroptimist International is a service organisation, the club was keen to run a pilot of the programme to see if there was a need. Through producing an Edwardian Music Hall and kind donations we raised enough money to fund the pilot working with the Alzheimer’s Society and using our members as volunteers and facilitators.” It is hoped the sessions will begin on October 16 and run from 10.30am until 12.30pm in the Community Centre at Allithwaite. For more information on Singing for the Brain please contact dementia support worker Sue Scott or Justine McCoy, services manager, on 01539 742 631. Operations manager for Alzheimer’s Society in Cumbria, Deborah Parker, said: “Even when many memories are hard to retrieve, music can sometimes still be recalled – if only for a short while. The sessions help people with dementia communicate improving their mood and leaving them feeling good about themselves.”

ALZHEIMER. A Matilde che non ricorda chi è ma sa ancora ballare

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Siamo fatti di ricordi anche di quelli dimenticati…

Nei giorni dedicati all’Azheimer, la malattia del lungo addio, della perdita del passato…. ARTeSOCIALE vuole esserci con un video di tre minuti. Un omaggio a tutte le persone che hanno dimenticato chi sono, ma non hanno dimenticato i passi di un tango, le frasi di un ritornello di un vecchio canto…  persone piene del loro passato in ogni ruga, capello bianco, amato accanto…

Quel che la mente non ricorda è scritto nel corpo,  custode delle emozioni e della storia di ogni singola vita.

A tutte le persone malate di Alzheimer, ai loro familiari, amici, parenti… e a chi se ne prende cura. Custodi tutti di quella singola storia.

 

 

Immagine anteprima YouTube

ALZHEIMER. Le paylist personali da fare ascoltare a pazienti affetti da demenza

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In occasione della giornata mondiale dedicata il 21 settembre all’Alzheimer invitiamo coloro che hanno un familiare o un amico o un paziente in cura affetto da demenza, a richiedere una playlist personale, progettata su misura.

Uno o più musicisti, musicoterapeuti esperti, con lunga esperienza di lavoro con persone malate di Alzheimer, con la consulenza di geriatri e neurologi metteranno infatti a disposizione le proprie conoscenze per supportare ed accompagnare i Caregiver (famigliari, operatori, amici) nella loro quotidianità, progettando un ascolto di brani (Playlist) che sia legato al rilassamento, ai ricordi, all’attivazione motoria, al recupero cognitivo, alla personalità specifica dell’anziano.

Le Playlist saranno individuali, chi intende aderire dovrà per prima cosa inviare mail di disponibilità al progetto all’indirizzo roberto.bellavigna@gmail.com. Ricevuta risposta affermativa dal nostro staff si potranno inoltrare (….se possibile e se  si vorrà) i dati richiesti dai Moduli qui sotto scaricabili. Indicheremo con precisione quali moduli saranno da considerare per dare a noi la possibilità di studiare una sequenza di brani musicali  appropriata caso per caso. Le Playlist saranno, inviate via mail, o saranno utilizzabili sul servizio musicale online Spotify, o potranno essere caricate ed inviate via posta ordinaria su supporti di salvataggio (pennetta usb per essere riprodotte su lettori mp3 in cuffia, cd audio).

Non è richiesto nessun contributo o pagamento (se non eventualmente i costi  di invio postale e costi del supporto di memoria, chiavetta, cd, cassetta). Altresì chi vorrà in modo autonomo potrà a sua completa discrezione sostenere nell’importo che crede più appropriato i progetti presenti sul sito. Le vostre risposte (in forma assolutamente anonima) potranno essere utilizzate per compiere studi, esposizione dati ricerche in sede di convegni tematici Musica-malattia di Alzheimer. I nostri tempi di risposta saranno commisurati al numero delle richieste ricevute. Vi chiediamo pazienza, sostegno fattivo, scambio di info inerenti al tema, passione nel seguire il nostro progetto nel tempo e nelle sue varie fasi. Si richiederà ai partecipanti un feedback per capire come e quando l’intervento musicale abbia o meno avuto un riscontro positivo.

Nonostante il progressivo deterioramento delle sue facoltà cognitive e funzionali, in moltissimi casi il malato di Alzheimer è in grado di ricordare le melodie e spesso anche le parole di motivi che sono stati la colonna sonora della sua vita. Quale la spiegazione? Secondo gli esperti probabilmente il motivo è che la musica coinvolge l’individuo principalmente sul piano emozionale e non su quello cognitivo. E sono le emozioni a riportare a galla le parole di una canzone o il suono di uno strumento. “Il potere del suono che restituisce al demente ponti privilegiati di comunicazione” Brano tratto da “Musicoterapia con il malato di Alzheimer”- Autori vari,  pubblicato da: Alzheimer Italia e Progetto Anziani Musicoterapia

Un’ascolto quotidiano musicale rinforza la comunicazione, crea nuove attività, rilassa e predispone al dialogo, incrementa soluzioni positive. Questo è uno spazio in continuo aggiorneremo  lo rinnoveremo con la partecipazione di chi avrà desiderio di conoscere e approfondire.

Le SCHEDE da compilare per richiedere la PlaylistAlzheimer possono essere scaricate sul sitoLamusicadellavita.eu

Promoting communication and wellbeing for people with dementia through Sonas

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Vol VII n.32

Promoting communication and wellbeing for people with dementia through Sonas

A group in Manchester uses an approach called Sonas to help people with dementia to express themselves. Danny Ratnaike reports on how activity may help communication.
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Alison Williams, a speech and language therapist, says,
‘If someone is struggling with an aspect of communication, they shouldn’t be made to feel it’s their problem.’
‘Communication is always a partnership, a joint understanding of what’s being said.’
Alison co-founded a group in south Manchester nine years ago that provides a weekly opportunity for people with dementia to connect and express themselves.
Sonas group in south ManchesterHelen Day-Mayer, whose mother Jacqueline attended for three years, says,
‘The sessions made me aware that while Mum’s speech had largely gone, there were plenty of other ways to communicate with her by using her other senses much more.’
Wellbeing

Alison leads a speech and language therapy team at Manchester Mental Health and Social Care Trust and set the group up with Admiral Nurse Loraine Butterworth. They chose an approach called Sonas – Irish Gaelic for ‘wellbeing’ – that uses a range of structured, multisensory activities.
Loraine says,
‘The regular format helps people to recognise and become familiar with the group, which is very helpful for people with short-term memory loss.
‘The short bursts of varied activities mean it’s OK if one thing doesn’t suit somebody, as you quickly move on.’
People with dementia may experience difficulties in finding words, understanding others or recognising objects, which can discourage valuable social interaction.
Alison says,
‘Sonas provides a tool that can be used for anyone at any stage of dementia. Our community group is for people who are quite well living at home, usually with a carer.’
Regular format

Kristy Stott, Speech and Language Therapy Assistant, has led the sessions for over five years. Each lasts two hours, extended from the more usual 45-minute Sonas session to be worthwhile for everyone travelling specially.
Activities use music, inflatable balls, things to smell and touch, proverbs to complete – anything that stimulates senses and memories. The session runs along to a CD, with a regular voice and signature tune providing a familiar structure.
Kristy says this means she can focus on individual attendees.
‘I don’t have to worry about the format, I can make sure everybody is involved and not left out.’
Pauline Snowden’s husband had Alzheimer’s and used to attend, and after he died four years ago she was taken on by the trust as a volunteer to help with the group.
She says,
‘Ray loved it – he was a referee until the age of 72 and always active. They have a soft ball they play football with, chair exercises and of course they sing.’
Loraine says,
‘One lady with very advanced dementia struggled to engage with her surroundings. After attending, she began to join in with some of the exercises and singing. She would be animated and began to make friends.’
Sonas group in south Manchester

Joy and happiness

Helen, whose mother was a headteacher and had mixed dementia, says,
‘It gave me ideas to follow up with at home in terms of sensory games and resources to use.
‘I also realised that making eye contact with Mum before I spoke to her made a huge difference to her comprehension.’
Helen stayed during the sessions at first, but soon felt able to spend the time doing things herself and sharing with other carers.
‘It was two hours where I could come up for air.’
Annabel Green, an Assistant Psychologist, took part in the group for a month before beginning work to gauge its impact.
She says,
‘You can just see the joy and happiness that people get from it – the big smiles on their faces, very warm and welcoming environment, and great rapport between the people with dementia and with staff.
‘The first time I went it really surprised me. One person came in without looking at anybody, but by the end he was shaking my hand and smiling.’
More mindful

Loraine says,
‘Finding ways to promote communication is very beneficial for maintaining relationships between the person with dementia and their family, as well as for the person’s wellbeing.’
Of course this can become difficult as dementia progresses. Pauline says,
‘I’ve done it myself. I used to say things to Ray and he’d look at me. I’d raise my voice but he wasn’t deaf, he just couldn’t understand the question.’
Kristy says,
‘If you need advice you could be referred to a speech and language therapist, or speak to the local Alzheimer’s Society.
‘Everyone should be made to feel valued, and not feel they have to withdraw from activities. It means being more mindful, more patient.’

fonte: http://www.alzheimers.org.uk/site/scripts/documents_info.php?documentID=2683&pageNumber=3

La música puede para ayudar a personas con Alzheimer a recuperar recuerdos de experiencias positivas de su vida

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Vol VII n.28

56 Congreso de la SEGG y 29 Congreso de la SCGG
Europa Press – jue, 22 may 2014
MADRID, 22 (EUROPA PRESS)

La música puede para ayudar a personas con Alzheimer a recuperar recuerdos de experiencias positivas de su vida, según ha asegurado la musicoterapéuta especializada en geriatría y demencias, Mónica de Castro, durante una ponencia realizada en el 56 Congreso de la Sociedad Española de Geriatría y Gerontología (SEGG) y el 20 Congreso de la Societat Catalana de Geriatría i Gerontología (SCGG). De hecho, un estudio realizado en 2009, mostró como en el córtex prefrontal medial de una persona sana existe un área que se activa cuando se escucha una música conocida, provocando recordar aspectos autobiográficos. Esta área es una de las que más tarde se deteriora en la enfermedad de Alzheimer.
“Podemos decir que la música tiene efectos sobre múltiples áreas del cerebro a nivel, tanto cortical como subcortical, y por lo tanto activa una red muy extensa que tiene una amplia cobertura de funciones. El ritmo influye sobre la regulación de la motricidad, la melodía tiene impacto sobre las emociones y la armonía está relacionada con aspectos cognitivos. Otros elementos como la intensidad, el tono, el tempo, la altura y el timbre se utilizan también para ayudar a regular estados de ánimo y aspectos fisiológicos”, ha comentado De Castro.
En este sentido, la experta ha señalado que la finalidad última de la musicoterapia es mejorar la calidad de vida de la persona y, especialmente, aquella que padece demencia porque es capaz de procesar la música después de haber perdido la capacidad de procesar el lenguaje.
Este hecho, prosigue, convierte a la música, en las fases más avanzadas, en una “importante” vía para la conexión con su propia identidad y la comunicación con su entorno más cercano, activando la memoria biográfica, las emociones asociadas y ofreciendo la posibilidad de compartir una experiencia propia con otro ser humano.
“Además, puede ser un estímulo que les proporciona confort y que puede mejorar su contribución a las actividades básicas como el aseo o la alimentación, añade la musicoterapéuta”, ha explicado la experta, para comentar que la música desvía el foco de atención de la persona de estímulos que no puede interpretar a un estímulo que tiene sentido, y por tanto tiene un efecto “calmante” ante estados de ansiedad en fases moderadas y avanzadas del proceso de demencia.
Asimismo, tal y como ha asegurado, en fases leves y moderadas puede contribuir a mantener las capacidades cognitivas y funcionales preservadas, retrasando el nivel de dependencia, y en fases más avanzadas puede ser una de las pocas vías de acceso a su propia identidad, una vía de comunicación con sus cuidadores, un estímulo que les proporciona confort y que puede mejorar su contribución a las actividades básicas como el aseo o la alimentación.
“Finalmente existe evidencia de que determinadas técnicas musicoterapéuticas pueden ayudar a reducir síntomas conductuales como la agresividad física y verbal o el deseo de deambular, contribuyendo a la mejora de la calidad de vida de la persona que padece la demencia y de sus cuidadores”, comenta De Castro.